Deb enjoys spending time with her 3 children and 4-year-old granddaughter. She works as a patient rights advocate and says, “The disease doesn't define who you are or what you can or cannot do. You define who you are.” 

Francisco works for a family company, trading bicycles and fitness equipment in the Azores islands. When he’s not teaching management classes at a nearby school, he enjoys traveling, reading, biking and photography.

Grethe has four sons and two step-daughters who help keep her active. When she isn’t biking to a café to meet friends, she enjoys gardening and knitting.

Jonas was diagnosed in 2012 at the age of 32. He lives with his wife and enjoys playing computer games in his free time.

  • Deb

    Pompe disease, USA,

    Deb enjoys spending time with her 3 children and 4-year-old granddaughter. She works as a patient rights advocate and says, “The disease doesn't define who you are or what you can or cannot do. You define who you are.” 

  • Francisco

    Gaucher disease, Portugal,

    Francisco works for a family company, trading bicycles and fitness equipment in the Azores islands. When he’s not teaching management classes at a nearby school, he enjoys traveling, reading, biking and photography.

  • Grethe

    MS, Denmark,

    Grethe has four sons and two step-daughters who help keep her active. When she isn’t biking to a café to meet friends, she enjoys gardening and knitting.

  • Jonas

    Fabry disease, Hong Kong,

    Jonas was diagnosed in 2012 at the age of 32. He lives with his wife and enjoys playing computer games in his free time.

GZUS-GZ-16-02-0565