PATIENT ORGANIZATION
|
DISEASE COMMUNITY
|
TYPE OF SUPPORT
|
|
International Pompe Association (IPA)
|
Pompe
|
General financial support
Indirect financial support
Financial support for PO's attendance to meeting(s)
|
Fabry International Network (FIN)
|
Fabry
|
Financial support for PO's attendance to meeting(s)
Indirect financial support
|
World Alliance of Neuromuscular Dystrophy Associations (WANDA)
|
Neuromuscular diseases
|
General financial support
|
International Genetic Alliance (IGA)
|
Genetic diseases
|
General financial support
Financial support for patient/ public education and awareness on disease(s)
Financial support for meeting(s) organized by PO
|
|
TACKERS
|
Organ transplant
|
General financial support
|